Jain Foundation

Jain Foundation, 3rd Avenue Northeast, Seattle, WA, United States


established Established :

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The Jain Foundation is a non-profit organization established by Ajit Jain and located in Seattle, Washington, whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency. These dystrophies are collectively termed dysferlinopathy, and include Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi muscular dystrophy 1 (MMD1). The Jain Foundation funds research projects around the world to better understand and develop therapies for this rare disease, and it plays an active role in managing the projects it funds. In addition to requiring accountability and transparency, the Jain Foundation encourages the sharing of ideas and resources between research teams in order to maximize efficiency and hasten development of a cure for dysferlinopathy. The Jain Foundation also supports diagnosis of dysferlinopathy patients at the genetic level to enable a rigorous clinical outcome study to measure the clinical progression of dysferlinopathy.

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